Tag Archive: CF

Reflecting on what she’s learned from her daughter, what comes to mind first for Shonda Allen is strength. “So many times, I just don’t know how she does it,” she says. “Alyssa just keeps pushing along. When I see her being so strong, it makes me be strong and say to myself ‘Why can’t I face this little thing in life when she faces something so big every day.’” Alyssa... View Article

Jan 31 2019

Most people don’t give breathing much thought, but cystic fibrosis can make this essential and typically ordinary act a challenge. Cystic fibrosis is a genetic disease that causes a thick, sticky buildup of mucus. It can trap bacteria, clogging the airways and leading to recurring infections that damage the lungs and make breathing increasingly difficult over time. The heavy mucus impacts other organs, including the pancreas, where it impedes digestive... View Article

Feb 9 2018

Eight-year-old Philip Hopkins likes to joke that he’s “FDA approved” now that he’s in the second phase of a research trial for a recently approved cystic fibrosis treatment drug. Philip was diagnosed with cystic fibrosis when he was just six weeks old, and he’s had the strong support of his dedicated family and a specialized team from our Cystic Fibrosis Center there for him every step of the way: “We love his... View Article

Jun 12 2017