Tag Archive: cystic fibrosis

Most people don’t give breathing much thought, but cystic fibrosis can make this essential and typically ordinary act a challenge. Cystic fibrosis is a genetic disease that causes a thick, sticky buildup of mucus. It can trap bacteria, clogging the airways and leading to recurring infections that damage the lungs and make breathing increasingly difficult over time. The heavy mucus impacts other organs, including the pancreas, where it impedes digestive... View Article

Feb 9 2018

When Amy Grazioso was pregnant with her son Tyler, now 12, she knew there was a chance he would be born with cystic fibrosis. Within his first two weeks of life, the diagnosis was confirmed. Cystic fibrosis is a genetic disease in which a thick and sticky mucus builds up in the organs, including the lungs. When this mucus plugs the airways, it makes breathing difficult. “It was really difficult... View Article

Jan 16 2018

Eight-year-old Philip Hopkins likes to joke that he’s “FDA approved” now that he’s in the second phase of a research trial for a recently approved cystic fibrosis treatment drug. Philip was diagnosed with cystic fibrosis when he was just six weeks old, and he’s had the strong support of his dedicated family and a specialized team from our Cystic Fibrosis Center there for him every step of the way: “We love his... View Article

Jun 12 2017

Making new discoveries that improve understanding and treatment of childhood diseases is an important part of CHoR’s mission. Dr. Henry Rozycki, CHoR’s Vice Chair for Research, answers some common questions about research studies and how research affects health care. What are research studies and why are they important to pediatric care? Research is the process of gathering and analyzing information to answer a question. A research study is the process... View Article

Dec 12 2015